Thursday, January 26, 2012

"No pink shirt, Spongebob shirt"

(Apologizing in advance for sideways videos)

Clara is two. 

Having a two year old with Spina Bifida, you end up with a lot more obstacles to deal with. 

For instance:

When she doesn't want to do something she tells you, "No!" She doesn't say it in a nice, rational tone, it is usually yelled and involves tears


Another thing you have to deal with when you have a 2 year old with Spina Bifida is that when you ask them to do/not do something, they will tell you "No!" or just out right ignore you and continue on doing what they want to do

"Clara, don't get all those forks out!"

Spina Bifida and age 2 create a child that doesn't want to cooperate one day

"Clara, stay by Bubba and Sissy and smile"

and the next day is sweet as pie

and it never fails that a 2 year old with Spina Bifida will insist that everything is theirs, often using the term "Mine" forcefully to convey this to anyone who is within hearing range. 

She is wearing Ainsley's shirt insisting that it is "MINE!" because frankly 'Maturity is overrated'

And sometimes, just sometimes a 2 year old with Spina Bifida will absolutely amaze you by doing something you were worried they may never do by themselves.

Two year olds with Spina Bifida = lots of work

Addendum: As I was reviewing this post for grammar and punctuation errors (of which I am sure I still left many) and reread all the challenges that come with being the mother of a 2 year old with Spina Bifida I realized that my 2 year old with Spina Bifida is just a 2 year old...

Spina Bifida does not define her

a little food for thought


  1. Love it! Especially the picture with the forks. That is Hannah's favorite thing to do, too, and she doesn't even have spina bifida! Clara is a doll...and this phase will pass (hopefully - that's what I keep telling myself!).

  2. I agree totally! Having a two year old with Spina Bifida is pretty much exactly the same as having a two year old.
    Love it!